In the Spring of 2012 we were blessed with our first child, our beautiful baby girl, Chelsea Alaina. While pregnant we learned that our baby was going to be born with the birth defect, Congenital Diaphragmatic Hernia (CDH).
CDH occurs in approximately 1 in every 2,500 births (1,600 cases in the U.S. each year). The cause is not yet known. The diaphragm fails to form or to close totally and an opening allows abdominal organs to move into the chest cavity, inhibiting lung growth. Roughly 50% of babies born with CDH do not survive. Of the 50% that do survive, most will endure long hospital stays, feeding issues, asthma and other problems, and possibly severe long-term medical issues.
Every time we look into our daughter's eyes we are reminded how truly fortunate we are that she is doing so well. And so we would like to focus our energies not only on being the best parents we can be, but also on helping others! Chelsea's sassy spirit, strength, and contagious smile are that to be admired. It is our hope as a family that she delivers encouragement to others.
In honor of our ROCKSTAR, we are hosting (what we hope to be the first annual) Chelsea Delivers Hope Summer Family Music Festival at Bar Anticipation, 703 16th Avenue, Lake Como (Belmar), NJ 07719 on Saturday, August 24, 2013 from 2:00 to 7:00 pm. The event is Family-Friendly and will include Live Music (see anticipated line up below), BBQ buffet, activities for kids of all ages, door prizes, and MORE!
Admission: Adults $20.00, Kids (5 years old & up) $15.00, Kids under 5 - free
Looking forward to seeing everyone there!!!