Allisyn's Grace CDH Research Fund


Allisyn's Grace CDH Research Fund

Goal:
$1,000.00
Achieved:
$555.00

56 percent of goal achieved.


Fundraising Goal:  $1,000.00

Total Number of Gifts: 13
Total Value of Gifts: $555.00

Recent Donors

Ryan and Cara Foos

Anonymous

Katie Smith Fields

In Memory of your sweet Allisyn, and in honor of the lives that will be saved

Anonymous

Karin Giesecke Arnold

Brian & Jaimee Hirschi

Joe & Joy Martin

Lindsey Basford

Dave and Chaunette

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December 7, 2009 is a day that will live in infamy for James and Kathleen Strickler, their daughter Brooklyn, and their sons Nathanael, Powell, Reagan, and August. It is the day they learned that the fraternal twins Kathleen was then carrying were both girls, and that one of the twins had a birth defect known as a congenital diaphragmatic hernia (CDH). James and Kathleen had never heard of this birth defect until the diagnosis, even though CDH occurs as frequently as spina bifida, cystic fibrosis, and muscular dystrophy. In a baby with CDH, the diaphragm does not completely form. This allows abdominal organs, such as the stomach, intestines, and liver, to slide into the chest cavity. Since a baby's lungs are among the last organs to form before birth, their growth is severely inhibited by the extra organs that have migrated into the chest cavity. Babies born with CDH have about a 50% chance of survival, depending on how big the hole is in the diaphragm, how many organs moved into the chest, and how small the lungs are at birth. If they can manage to breathe on their own, the defect can be surgically repaired.

To give their unborn daughter her best chance of survival, the Stricklers temporarily relocated to Pennsylvania so Kathleen could have her pregnancy monitored at the Children's Hospital of Philadelphia, which has the top CDH treatment program and facilities in the world, and give birth in their Fetal Treatment Center's Special Delivery Unit. The twins were delivered on April 13, 2010. Unfortunately, despite the doctors' heroic efforts, baby Allisyn Grace lived only ten hours. Her death was a devastating experience for the whole family. A month later, the Stricklers returned to Logan with Allisyn's healthy twin sister, Kathryn Julene. That following summer was a lost season, as the mourning family needed time and space to put their lives back together.

The Stricklers have decided to spend their time as a family raising awareness about CDH and fundraising for reasearch and treatment of CDH babies. With March 31, 2011 declared as Congenital Diaphragmatic Hernia Awareness Day in Utah by Governer Gary R. Herbert, the Stricklers decided to hold their first fundraising event to honor their daughter at the local Texas Roadhouse restaurant.

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Tammie Holmes
Fri, Apr 01, 2011
What can a mother say - I know your heartache. We too had a little boy born with CDH and he only lived 16 short days. But it was amazing to know how little was known on this disease and what can be done. We didn't know anything was wrong until after his birth as well. We had several ultra sounds and they showed a 'healthy' baby boy - you know the shock when your husband comes in and tells you something is very wrong and our baby is really sick. But we did have a wonderful experience with Mitchell and we will cherish that forever. He would have been 11 years old. Thank you for your work and desire to help others in taking on the cause for this diagnosis. Sincerely, Tammie

Crystal Freckleton
Thu, Mar 31, 2011

Lindsey Basford
Thu, Mar 31, 2011
I am sorry for your loss and hope that my small donation can help the researchers move forward in finding the cause of this defect. My nephew James Loran Hircshi was born with CDH. He was among the lucky to make it through. Thank you for starting this for your beautiful baby girl Allisyn. It is a wonderful way to remember her and to help others at the same time.


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